关键词: 短肠综合征, 饮食行为, 饮食管理, 质性研究

Abstract:

To deeply understand the dietary behavior characteristics and self dietary management experience of patients with short bowel syndrome, so as to further guide and intervene the dietary management of patients and improve the compliance of dietary management. Methods Face to face and semi-structured interviews were conducted in 15 patients with short bowel syndrome by

using qualitative research phenomenological method. The interview data were analyzed by Colaizzi phenomenological data analysis method. Results There were four aspects of experience in the dietary behavior characteristics and management of patients with short bowel syndrome: daily dietary structure change, dietary guidance information acquisition and cognition, self dietary management types, dietary management support needs. Conclusion In the future work, medical staff should pay attention to the

improvement of the cognition of disease and diet knowledge of patients with short bowel syndrome. Multi mode diet guidance can be used to improve the knowledge reserve of patients, and the diet compliance can be improved by making scientific and quantitative diet plan. At the same time, it should be pay attention to the family and social support of patients to ensure their normal social function.

Key words: Short bowel syndrome, Dietary behavior, Dietary management, Qualitative research